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Letter: Awareness, advocacy needed for those with hereditary disorders of connective tissue

Lisa Mouche, the mother of two daughters with hereditary disorders of connective tissue, writes that more awareness will improve patients' treatment options.

United statesSarah lazarusJay dahlBrooke feltmanLinda bluesteinNational academieNational academies of scienceUs social security administrationEssentia healthEuropean organization for rare diseasesLoeys dietz syndromeGolden stethoscopeSecurity administrationMayo clinicEuropean organizationRare diseases

An Afternoon with the Glaucomfleckens: On hypermobility and physician burnout

An Afternoon with the Glaucomfleckens: On hypermobility and physician burnout
healio.com - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from healio.com Daily Mail and Mail on Sunday newspapers.

Linda bluesteinLady glaucomfleckenKristin flanaryByadamj brownWilliam flanaryWilliame flanaryKristen flanary

Patient-Scientists Leverage Personal Experiences to Advance Research

Patient-Scientists Leverage Personal Experiences to Advance Research
miragenews.com - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from miragenews.com Daily Mail and Mail on Sunday newspapers.

United statesJillian schnaudigelMaggie osterhausEmily fleckCortney gensemerShaina butlerRoman fennerLinda bluesteinGensemer summer intern programNorris labBucknell universityScientist training programEhlers danlos societyCollege of wisconsinBrigham young universityChip norris

MDs With Chronic Illness Live in a Different Medical World

Physicians with chronic illnesses face unique professional challenges, including resistance from other physicians when they seek treatment. But they also have a much richer understanding of their own patients.

New yorkUnited statesAmy stenehjemJason bakerLinda bluesteinZainub dhananiLisa iezzoniCenters for diseaseNational health interviewStanford universityHarvard medical schoolDoctor when you haveChronic conditionHealth interview surveyWeill cornell medicineDisease control

I Prescribe Opioids We Shouldn t Treat Everyone Like an Addict

A pain doctor cautions against "a blanket no" on opioids for all patients: "The pendulum has swung too far."

Linda bluesteinEhlers danlos syndromeSource photo courtesy

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