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Advancing equity in access to rare disease care through the ERNs: a conversation with experts

To commemorate Rare Disease Day 2023 on “equity”, a special edition of CSL Behring’s New Horizon Talks explores the role of European Reference Networks in advancing equity of access to specialised care and diagnosis. Discover extracts from the conversation now. ....

Baiba Ziemele , Stelios Kympouropoulos , Newcastle University , European Reference Networks Erns , European Health Data Space , Haematology Division , Belgian Saint Luc University Hospital , Latvia Hemophilia Society , Rare Disease Day , European Action , European Reference Networks , New Horizon Talks , Rare Disease Policy Manager , Rare Diseases ,

Advocacy in Hemophilia 2022

Advocacy in Hemophilia 2022 This Reuters Events Advocacy in Hemophilia 2022 Series, of three virtual events, being conducted in partnership 18762752 ....

United States , Chris Bombardier , Brian Omahony , Cesar Garrido , Agnes Kisakye , Cecile Le Camus , Tirsa Carcamo Bonilla , Latifa Lamhene , Jack Uldrich , Baiba Ziemele , Flaminia Macchia , Masood Fareed Malik , Hemophilia Foundation Of Pakistan , Rare Diseases International , Haemophilia Foundation Of Uganda , Latvia Hemophilia Society , World Federation Of Hemophilia , Irish Haemophilia Society , Committee Member , Conferences Health , Head Of Global Medical Affairs Hemophilia , Algerian Hemophilia Association , Honduran Society Of Hemophilia , Reuters Events Advocacy , World Federation , Save One Life ,