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Advancing equity in access to rare disease care through the ERNs: a conversation with experts

To commemorate Rare Disease Day 2023 on “equity”, a special edition of CSL Behring’s New Horizon Talks explores the role of European Reference Networks in advancing equity of access to specialised care and diagnosis. Discover extracts from the conversation now. ....

Baiba Ziemele , Stelios Kympouropoulos , Newcastle University , European Reference Networks Erns , European Health Data Space , Haematology Division , Belgian Saint Luc University Hospital , Latvia Hemophilia Society , Rare Disease Day , European Action , European Reference Networks , New Horizon Talks , Rare Disease Policy Manager , Rare Diseases ,

Advocacy in Hemophilia 2022

Advocacy in Hemophilia 2022 This Reuters Events Advocacy in Hemophilia 2022 Series, of three virtual events, being conducted in partnership 18762752 ....

United States , Chris Bombardier , Brian Omahony , Cesar Garrido , Agnes Kisakye , Cecile Le Camus , Tirsa Carcamo Bonilla , Latifa Lamhene , Jack Uldrich , Baiba Ziemele , Flaminia Macchia , Masood Fareed Malik , Hemophilia Foundation Of Pakistan , Rare Diseases International , Haemophilia Foundation Of Uganda , Latvia Hemophilia Society , World Federation Of Hemophilia , Irish Haemophilia Society , Committee Member , Conferences Health , Head Of Global Medical Affairs Hemophilia , Algerian Hemophilia Association , Honduran Society Of Hemophilia , Reuters Events Advocacy , World Federation , Save One Life ,

A completely new, modern Latvian digital health platform to be developed

What should the patient digitalization strategy be, and how can patients, doctors, and other medical professionals benefit from innovations in t. ....

Baiba Ziemele , Karina Sotnika , Novartis Baltics , Andrew Warrington , Roche Latvija , Patient Organization Network , Children Clinical University , Worldupstart Corp , Health Of Latvia Daniels Pav , Ministry Of Health , Latvian Alliance Of Rare Diseases , National Health Service , European Commission Andrzej Rys , Health Systems , Health Of Denmark Magnus Heunicke , Health Data Summit Riga , World Health Organization , Life Sciences Prashant Shah , Intel Health , Nordic Council Of Ministers , Digital Leap , Improved Patient Care , Latvia Daniels Pav , Lung Cancer Patient , Relative Association , Rare Diseases ,

Tomorrow in Riga will take place international online summit on digitization of healthcare data: Health Data Summit Riga 2021: Digital Leap for Improved Patient Care

Tomorrow, November 26, 2021, all interested parties will have an opportunity to watch the Health Data Summit Riga 2021: Digital Leap for. ....

United States , Republic Of Latvia , Siim Saare , Andrew Warrington , Kristaps Krafte , Marina Petrakova , Prashant Shah , Daniels Pav , Karina Sotnika , Baiba Ziemele , Novartis Baltics , Andrzej Rys , Roche Latvija , Magnus Heunicke , Vigo Health , Children Clinical University , Health Of Denmark Magnus Heunike , Health Of Latvia Daniels Pav , Ministry Of Health , Head Of Worldupstart Corp , Latvian Alliance Of Rare Diseases , Health Founders , American Chamber , Health Systems , Health Data Summit Riga , Health Of Denmark ,