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Parents' hope for 'loving' twins, 11, who have rare Fragile X syndrome | UK News

As the parents of twins with a rare condition called Fragile X, milestones like Christmas are a time of foreboding as well as celebration. ....

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Allos Pharma Inc. Receives FDA Guidance for the Design of a Phase 3 Trial to Support a New Drug Application for Treatment of Fragile X Syndrome

/PRNewswire/ Allos Pharma Inc. ("Allos"), a biopharmaceutical company specializing in the development of treatments for rare neurological disorders,. ....

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Decades-long quest to beat Fragile X fueled by persistence, science and relentless optimism

Decades-long quest to beat Fragile X fueled by persistence, science and relentless optimism
msn.com - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from msn.com Daily Mail and Mail on Sunday newspapers.

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Audio: An Alzheimer's Drug May Boost Cognition In People With Fragile X Syndrome

An experimental drug intended for Alzheimer s patients seems to improve both language and learning in adults with Fragile X syndrome.
The drug, called BPN14770, increased cognitive scores by about 10% in 30 adult males after 12 weeks, a team reports in the journal
Nature Medicine.
That is enough to change the lives of many people with Fragile X, says Mark Gurney, CEO of Tetra Therapeutics, developer of the medicine.
People with Fragile X with an IQ of 40 are typically living with their parents or in an institutional setting, Gurney says. With an IQ of 50, in some cases they re able to ride the bus, they re able to hold a job with some assistance and they re able to function better in their community. ....

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Encouraging Results For Alzheimer's Drug Repurposed For Fragile X Syndrome : Shots

Fragile X syndrome involves changes in the X chromosome, as pictured in the four columns of chromosomes starting on the left. The fifth column, on the far right, shows two normal X chromosomes.
Richard J. Green/Science Source
An experimental drug intended for Alzheimer s patients seems to improve both language and learning in adults with Fragile X syndrome.
The drug, called BPN14770, increased cognitive scores by about 10% in 30 adult males after 12 weeks, a team reports in the journal
Nature Medicine.
That is enough to change the lives of many people with Fragile X, says Mark Gurney, CEO of Tetra Therapeutics, developer of the medicine. ....

Andy Tranfaglia , Katie Clapp , Michael Tranfaglia , Mark Gurney , Massachusetts Institute Of Technology , Tetra Therapeutics , Mark Bear , Massachusetts Institute , கேடீ கைதட்டல் , குறி கர்னி , மாசசூசெட்ஸ் நிறுவனம் ஆஃப் தொழில்நுட்பம் , டெட்ரா சிகிச்சை , குறி தாங்க , மாசசூசெட்ஸ் நிறுவனம் ,