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Asia and the Indian Subcontinent: A Vision for Clinical Studies of Rare Diseases with Varied Prevalence Globally

Herndon, VA (PRWEB) August 01, 2023 There are globally inconsistent definitions of what constitutes a rare disease. According to the Orphan Drug Act ....

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Advancing Rare Disease Research With Patient Registries

Advancing Rare Disease Research With Patient Registries
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Celebrating Rare Disease Day and 40 Years of the Orphan Drug Act Advocating for Rare Disease Patients and Their Families

Herndon, VA (PRWEB) February 07, 2023 Global life expectancy has more than doubled over the last two centuries, from less than 30 years to more than 72 ....

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Families in India Face Ongoing Challenges When Coping With Rare Diseases

HERNDON, VA. (PRWEB) October 17, 2022 In India, an estimated 70 million people are living with a rare disease.(1) According to a recent report from RARE-X, ....

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Political Squabbles Slow Drug Development for Rare Diseases

Herndon, VA (PRWEB) September 07, 2022 The U.S. Food and Drug Administration, the key regulatory agency governing clinical trials in the US, has been slow ....

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