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Why you should be aware of thalassemia

Why you should be aware of thalassemia
tribuneindia.com - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from tribuneindia.com Daily Mail and Mail on Sunday newspapers.

Alka Chaudhary , Inusha Panigrahi , National Award For The Empowerment Of Persons , Chandigarh Thalassemia Society , Regional Organ Tissue Transplant Organisation Chandigarh , Marrow Donor Registry India , Sub Junior Ball Badminton Championship , Regional Organ , Tissue Transplant Organisation Chandigarh , National Award ,

Families in India Face Ongoing Challenges When Coping With Rare Diseases

HERNDON, VA. (PRWEB) October 17, 2022 In India, an estimated 70 million people are living with a rare disease.(1) According to a recent report from RARE-X, ....

United States , New Delhi , Shubhangi Patel , Harsha Rajasimha , Inusha Panigrahi , Vasanth Rao , Observer Research Foundation , Indo Us Organization For Rare Diseases Indousrare , Department Of Advanced Pediatrics Centre , Shyama Narang Foundation , Centers Of Excellence Coes , National Policy For Rare Diseases , Rare Diseases , Advanced Pediatrics Centre , Central Government , Union Ministry , Family Welfare Rare Diseases Cell , National Policy , Select Centers , Motor Neuron Diseases , Lou Gehrig , Founder Trustee , Indian Council , Medical Research , National Registry , Founder Chairman ,

Fund crunch in PGI, Chandigarh, hinders treatment of rare diseases

It took three years for Harmeet Kaur to find that her child is suffering from a rare disease and she has been keeping high hopes for his recovery, as he turns eight this year. He has been diagnosed with duchenne muscular dystrophy (DMD), a rare genetic disease, the treatment of which costs about Rs6 ....

Himachal Pradesh , Naina Mishra , Inusha Panigrahi , Harmeet Kaur , Department Of Advanced Paediatrics Centre , Advanced Paediatrics Centre , Central Government ,