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OVID Health s initiave rewarding companies patient-centricity launches

An international initiative that recognizes, rewards, and benchmarks the reputations of pharma companies in patient engagement and centricity has opened.

United kingdomJenny ousbeyTanya collinCollette goldrickSharon hallSarah woolnoughCorporate affairs strategyKing fundAssociation of the british pharmaceutical industryPatient partnership indexPublic affairsInternational gaucher alliancePatient partnership initiativeTanya collin histedBritish pharmaceutical industryGoldrick executive director corporate affairs

Horizon Therapeutics plc Announces 2023 RAREis Global Advocate Grant Recipients

Horizon Therapeutics plc Announces 2023 RAREis Global Advocate Grant Recipients
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Nederlandse leverpatienten verenigingEimear rigbyAssociazione italiana sindromeDistrofia brasilMatt fleschRareis instagramMichelle rivasA italia famiglieBeck fahrner syndrome foundationRare disease ghana initiativeChordoma foundationSyndrome foundationInternational gaucher allianceErdheim chester disease global allianceInternational patient organisation for primary immunodeficienciesCholestasis network

Horizon Therapeutics plc Announces 2023 #RAREis Global Advocate Grant Recipients

Fifty patient advocacy organizations from around the world awarded a $5,000 grant to address unique challenges faced in rare disease communities .

Nederlandse leverpatienten verenigingMatt fleschDistrofia brasilAssociazione italiana sindromeA italia famiglieEuropean huntington associationNorthern ireland rare disease partnershipGlanzmann research foundation incPhilippine society for orphan disorders incRecurrent respiratory papillomatosis foundationAlliance for pulmonary hypertensionBulgarian society of the patientsPediatric epilepsy surgery allianceFoundation for sarcoidosis researchOsteogenesis imperfecta foundationBones inc

THE INTERNATIONAL GAUCHER ALLIANCE AND CERNER ENVIZA ENROLL FIRST PATIENT IN GARDIAN REGISTRY

/PRNewswire/ The International Gaucher Alliance (IGA) and Cerner Corporation (NASDAQ: CERN) announce that the GARDIAN registry (Gaucher Registry for.

United statesCerner envizaElin haf daviesMichael fronstinTanya collinGaucher registry for development innovationInternational gardian limitedInternational gaucher allianceHealth tech nasdaqCerner corporationGaucher registryDevelopment innovationNeuronopathic diseaseLysosomal storage disorderTanya collin histedInternational gaucher

THE INTERNATIONAL GAUCHER ALLIANCE AND CERNER ENVIZA ENROLL FIRST PATIENT IN GARDIAN REGISTRY

/PRNewswire/ The International Gaucher Alliance (IGA) and Cerner Corporation (NASDAQ: CERN) announce that the GARDIAN registry (Gaucher Registry for.

United statesCerner envizaElin haf daviesMichael fronstinTanya collinGaucher registry for development innovationInternational gardian limitedInternational gaucher allianceHealth tech nasdaqCerner corporationGaucher registryDevelopment innovationNeuronopathic diseaseLysosomal storage disorderTanya collin histedInternational gaucher