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Millions have the invisible, debilitating 'bendy body' disease. Why isn't the medical profession paying more attention?

Millions have the invisible, debilitating 'bendy body' disease. Why isn't the medical profession paying more attention?
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Millions have the same 'bendy body' disease as my daughter. Why isn't the medical profession paying more attention?

(CNN) — One day in July 2021, my then 15-year-old daughter Poppy stumbled and fell while walking down some stairs, grazing her knee. It wasn’t a serious wound, but over the weeks it didn’t heal. Around the same time, her wrists and knees became sore; her ankles started rolling when she walked; her hands began […] ....

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Millions have the same 'bendy body' disease as my daughter. Why isn't the medical profession paying more attention?

Millions have the same 'bendy body' disease as my daughter. Why isn't the medical profession paying more attention?
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Millions have the same 'bendy body' disease as my daughter. Why isn't the medical profession paying more attention?

Millions have the same 'bendy body' disease as my daughter. Why isn't the medical profession paying more attention?
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What is Ehlers-Danlos syndrome, and why isn't more being done?

One day in July 2021, my then 15-year-old daughter Poppy stumbled and fell while walking down some stairs, grazing her knee. It wasn t a serious wound, but over the weeks it didn t heal.
I took Poppy to doctors who conducted tests, but they couldn t find out what was wrong with her. Then, in October, a breakthrough. ....

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