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5 Lessons I ve Learned From Parenting a Child With a Rare Disease

Image zoom The author and her son. He was walking at the beach for the first time on the same day that he received a neurogenic bladder diagnosis in October 2019. | Credit: Courtesy of Holly Kearl My nearly 3-year-old has an unusual body. He has lifelong colorectal and bladder differences from being born with threerarediseases and a disability. He s also a determined, mischievous, and creative child whom I love very much. As I parent him, there have been many days when I ve experienced both big highs and big lows and at first that surprised me how could I feel such opposing feelings at once?

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