5 Lessons I've Learned From Parenting a Child With a Rare Disease

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The author and her son. He was walking at the beach for the first time on the same day that he received a neurogenic bladder diagnosis in October 2019.
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Credit:
Courtesy of Holly Kearl
My nearly 3-year-old has an unusual body. He has lifelong colorectal and bladder differences from being born with threerarediseases and a disability. He's also a determined, mischievous, and creative child whom I love very much.
As I parent him, there have been many days when I've experienced both big highs and big lows and at first that surprised me—how could I feel such opposing feelings at once?

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