Updated spina bifida guidelines cover care across the entire lifespan
Globally, nearly 300,000 babies are born with neural tube defects including spina bifida (SB) each year. This openly available special issue of the
Journal of Pediatric Rehabilitation Medicine (
JPRM) provides 20 important evidence- and consensus-based updates to key sections of the 2018 Guidelines for the Care of People with Spina Bifida issued by the Spina Bifida Association (SBA). These reflect current recommendations for the care of patients with SB across the entire lifespan, from prenatal counseling to adult care.
As a result of research advancements and improved team-based patient care, approximately 80%-90% of children with SB now live to adulthood in the United States. The Guidelines were written with this idea in mind and present the best evidence for what care should be delivered, regardless of the model or types of practitioners available.
Mum hopes fundraiser will help support baby daughter born with organs outside her body
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Family receives national fundraising recognition from Spina Bifida Association
The Braun family, along with the Dows and Belmond communities, raised nearly $21,000 for the Spina Bifida Association of Iowa. Author: Khalil Maycock Updated: 1:22 PM CST January 27, 2021
DOWS, Iowa A central Iowa family recently earned national recognition from the Spina Bifida Association for being the top fundraising team for 2020, raising $20,890.
The Braun family said the recognition was very special to them because Spina Bifida is a condition that hits close to home, with their 10-year-old daughter Ava having it.
Jodi Braun, Ava s mother, said she is paralyzed from the ribs down. When a child is born with Spina Bifida their spinal cord is formed on the outside of their back and their nerves are outside of their skin, Braun said.
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Ruth Madeley s appearance on Celebrity Best Home Cook fills a major gap in disabled visibility
Ambulatory wheelchair users are seldom seen.
By Rachel Charlton-Dailey Dave J HoganGetty Images
With no sign of Lockdown 3 going anywhere, we need some lovely comfort viewing. So it s great news that the BBC s
Best Home Cook is back on our screens, this time with a celebrity edition.
The ten celebs hoping to impress judges Dame Mary Berry, Angela Hartnett and Chris Bavin are reality TV star Ferne McCann, Welsh rugby legend Gareth Thomas, comedian Desiree Burch, ex-politician and broadcaster Ed Balls, TV presenter Karim Zeroual, reality TV star Tom Read Wilson, actor Shobna Gulati, comedian Ed Byrne, journalist Rachel Johnson and – finally, the one I m most excited about – actor Ruth Madeley.
Support sought for toddler who needs lifesaving surgery
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A FUNDRAISING campaign has been launched to help raise funds for a toddler who needs lifesaving surgery.
Sarah Summerly was born in June 2019 with OEIS complex, a rare combination of serious birth defects resulting in her liver, intestines and bladder developing outside her body.
She also has a severe form of Spina Bifida and clubbed feet meaning she is is unable to walk and requires intense care.
The toddler lives with her parents Michelle and Ger in Ennis, County Clare. Her father previously worked in Limerick and has strong links to the city.
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