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Updated spina bifida guidelines cover care across the entire lifespan
Globally, nearly 300,000 babies are born with neural tube defects including spina bifida (SB) each year. This openly available special issue of the
Journal of Pediatric Rehabilitation Medicine (
JPRM) provides 20 important evidence- and consensus-based updates to key sections of the 2018 Guidelines for the Care of People with Spina Bifida issued by the Spina Bifida Association (SBA). These reflect current recommendations for the care of patients with SB across the entire lifespan, from prenatal counseling to adult care.
As a result of research advancements and improved team-based patient care, approximately 80%-90% of children with SB now live to adulthood in the United States. The Guidelines were written with this idea in mind and present the best evidence for what care should be delivered, regardless of the model or types of practitioners available.