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Funding supports Australians living with rare disease

Date Time Funding supports Australians living with rare disease UNSW Sydney researchers have been awarded $1.9 million for a project that will develop and deliver rare disease resources, education and training. UNSW has been awarded $1.9 million in federal government funding for the Rare Awareness, Education, Support and Training (RArEST) project. The project will develop and deliver rare disease awareness resources, education, support, and training with a focus on mental health, and social and emotional wellbeing. The funding is part of the $3.3 million announced by federal Minister for Health and Aged Care, Greg Hunt, to support the approximate two million Australians living with one of 7000 rare diseases.

$3 3 million to support Australians living with rare disease

The Hon Greg Hunt MP Minister for Health and Aged Care The Morrison Government is providing $3.3 million to support the approximate two million Australians living with a rare disease, providing them with support, raise awareness and create new educational programs. The new funding will drive the development and delivery of awareness and education resources, and care and support services, for people living with a rare disease, their families and carers, health professionals and the wider population. Minister for Health and Aged Care, Greg Hunt, said the funding would help to provide new supports to those living with rare diseases. “Rare diseases are defined as those that affect fewer than 5 in 10,000 people. It’s estimated there are more than 7,000 rare diseases affecting about 8% of the Australian population. Most have genetic origins and many have no known cure,” Minister Hunt said.

Approval processes to be scrutinised for new drugs and medical technologies

Date Time Approval processes to be scrutinised for new drugs and medical technologies On Thursday 11 and Friday 12 March 2021 the House of Representatives Standing Committee on Health, Aged Care and Sport will hold two days of public hearings in Sydney as part of the Committee’s ongoing inquiry into approval processes for new drugs and novel medical technologies in Australia. The Committee will hear evidence from numerous stakeholders including patient advocacy groups, clinician and research bodies, and industry. Witnesses will include rare disease advocates from Rare Voices Australia, and representatives from the Medical Technology Association of Australia. The program for the hearings is available at the Committee’s website.

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