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Rare Conditions Added to Newborn Screening, Spinal Muscular Atrophy Treatment

Rare Conditions Added to Newborn Screening, Spinal Muscular Atrophy Treatment
miragenews.com - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from miragenews.com Daily Mail and Mail on Sunday newspapers.

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What it s like for Australians living with rare diseases

What it s like for Australians living with rare diseases
heraldsun.com.au - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from heraldsun.com.au Daily Mail and Mail on Sunday newspapers.

South australiaRonald mcdonaldGough whitlamRare voices australiaRare disease dayEhlers danlos syndromePostural orthostatic tachycardia syndrome

Katie Alexander races in her first ever Melbourne to Geelong Passage Race

It was a dream come true for 59-year-old novice sailor Katie Alexander yesterday when she was hoisted onboard the Trans-Pacific 52-foot yacht ‘Wot Eva’ to

Point lonsdaleKatie alexanderLeigh mccluskyWaves foundationRoyal geelong yacht clubWot evaGeelong passageRare voices australiaMaking waves foundationSydney hobartMaking waves

Dream come true for disability sailor as she competes in her 1st Melbourne to Geelong Passage Race

Dream come true for disability sailor as she competes in her 1st Melbourne to Geelong Passage Race
sail-world.com - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from sail-world.com Daily Mail and Mail on Sunday newspapers.

Point lonsdaleKatie alexanderLeigh mccluskyRoyal geelong yacht clubWaves foundationGeelong passage raceWot evaGeelong passageRare voices australiaMaking waves foundationSydney hobartMaking waves

Professor Tracy Dudding-Byth Honored for Rare Disease Research | The Singleton Argus

Professor Tracy Dudding-Byth's efforts to prioritize rare diseases are recognized as she is honored with a membership to the Order of Australia.

Greg huntTracy duddingHunter new england healthUniversity of newcastleNational medical health research councilGenetics of learning disability serviceNational strategic action plan for rare diseasesSteve waugh foundationProfessor tracy dudding bythAustralia daySimone de peakTracy dudding bythHunter new englandRare voices australiaNational strategic action planLearning disability service