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Patient advocacy groups seek more funds for treatment of rare diseases Updated: Updated: ‘Focus on research will help to cut the cost for healthcare systems’ Share Article ‘Focus on research will help to cut the cost for healthcare systems’ On Rare Diseases Day which fell on Sunday, stakeholders demanded more funds for treatment of patients afflicted with known rare diseases, besides more research. According to the Indian Society for Clinical Research, there are 7,000 known rare diseases that have affected 300 million people across the globe. Of them, 70 million are in India, and most have no or very limited treatment options. Society president Chirag Trivedi said one in 20 persons would live with a rare disease at some point in life. A large number of patients had no access to appropriate diagnosis or treatment. “This should be a wake-up call for clinical researchers,” he said. Focus on research could reduce the cost for healthcare systems and improve the qua

Tamil naduPrasanna shirolManjit singhChirag trivediIndian society for clinical researchOrganisation of rare diseases indiaHealth departmentMinistry of healthMadras high courtHealth ministryInternational gaucher allianceRare diseases dayIndian societyClinical researchFamily welfareRare diseases india