BBC News
Published
image copyrightPA Media
image captionJoe Giddens had initially set himself a target of nine ascents of the 3,209ft (978m) Lake District peak
A photographer has battled terrible weather to scale England s highest mountain six times in a row to raise money for an ill child s treatment.
Joe Giddens had aimed to climb up and down Scafell Pike for 24 hours, but bad weather forced him to halt after 22.
Marley Powell was born with a rare genetic disorder - type 1 spinal muscular atrophy (SMA).
His parents want to take him to the US for treatment that could prolong his life, but which is extremely expensive.
7-month-old Marley Jaxon Powell was born with Type 1 spinal muscular atrophy
His parents Wes Powell, 22, and Rosie Walton, 19, hope to raise £1.6million
An award-winning photographer has battled hail, freezing rain and 60mph winds to scale England s highest peak six times in 24 hours in a bid to help a seven-month-old baby s fight against rare genetic disorder.
Joe Giddens, 33, decided to attempt the epic challenge on the 3,209ft (978m) Scafell Pike to help seven-month-old Marley Powell, who hasType 1 spinal muscular atrophy (SMA), the leading genetic cause of infant deaths.
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The rare genetic disorder affects moving and breathing- 95% of babies with SMA do not live past 18 months without effective treatment.
Photographer tackles horrendous mountain weather to support seriously ill baby
PA
20 December 2020, 11:02 am
An award-wining photographer has battled hailstorms, freezing rain and 60mph winds to scale England’s highest peak six times in 24 hours in a bid to give a seriously ill baby a chance of a longer life.
Joe Giddens, 33, picked some of the worst weather of the winter so far to attempt an epic challenge on the 3,209ft (978m) Scafell Pike to help seven-month-old Marley Powell, who has a rare genetic disorder.
Marley’s parents Rosie-Mae Walton, 19, and Wes Powell, 22, from Driffield, East Yorkshire, are hoping to raise enough money so he can access “the most expensive drug in world” in the United States in a bid to make sure this Christmas is not his last.
Scafell Pike 24-hour mountain climb for baby s US treatment
Published
image captionMarley Powell s treatment in the United States is expected to cost $2.1m
A photographer is spending 24 hours climbing up and down England s highest mountain to raise money for treatment which could prolong the life expectancy of a baby with a rare genetic disorder.
Marley Powell was born with type 1 spinal muscular atrophy (SMA).
His parents want to take him to America for a new therapy, described as the most expensive drug in the world .
To help raise funds, Joe Giddens is scaling Scafell Pike as many times as he can over 24 hours.
Leicester man to scale mountain to help baby with rare genetic disorder
Joe Giddens aims to climb England s highest peak
Rosie-Mae Walton, 19, and Wes Powell, 22 with their son Marley (Image: PA media)
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