7-month-old Marley Jaxon Powell was born with Type 1 spinal muscular atrophy
His parents Wes Powell, 22, and Rosie Walton, 19, hope to raise £1.6million
An award-winning photographer has battled hail, freezing rain and 60mph winds to scale England s highest peak six times in 24 hours in a bid to help a seven-month-old baby s fight against rare genetic disorder.
Joe Giddens, 33, decided to attempt the epic challenge on the 3,209ft (978m) Scafell Pike to help seven-month-old Marley Powell, who hasType 1 spinal muscular atrophy (SMA), the leading genetic cause of infant deaths.
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The rare genetic disorder affects moving and breathing- 95% of babies with SMA do not live past 18 months without effective treatment.