comparemela.com

Latest Breaking News On - Rare neurological diseases - Page 2 : comparemela.com

NTSAD to honor Guangping Gao for lifetime work on Canavan disease, as gene therapy trial shows promise

CureDuchenne Hosts Conversation with Pfizer to Discuss Opening of First U S Sites in Phase 3 Trial of Investigational Gene Therapy for Ambulatory Patients with Duchenne Muscular Dystrophy

/PRNewswire/ CureDuchenne, a leading global nonprofit focused on finding and funding a cure for Duchenne muscular dystrophy (DMD), today released a webinar.

Treatabolome project designed to shorten diagnosis-to-treatment time for patients with rare diseases

The Treatabolome project is a research initiative to develop a freely available, interoperable online platform to disseminate rare disease and gene-specific treatment information to healthcare professionals regardless of their level of specialized expertise to reduce treatment delays. This initiative is highly relevant to neuromuscular disorders as they are rare diseases by definition. In this special issue of the Journal of Neuromuscular Diseases, experts contribute Treatabolome-feeding systematic literature reviews on rare neurological and neuromuscular disorders.

New initiative to reduce treatment delays for patients with rare diseases

The Treatabolome project is a research initiative to develop a freely available, interoperable online platform dedicated to disseminating rare disease and gene-specific treatment information to healthcare professionals regardless of their level of specialized expertise.

© 2024 Vimarsana

vimarsana © 2020. All Rights Reserved.