Latest Breaking News On - Rare disease film - Page 1 : comparemela.com

Global Genes staff member Daniel DeFabio shares his why - why he became involved in the rare community after his son was diagnosed with Menkes disease.

New yorkUnited statesDaniel lucas defabioDaniel defabioCommunity engagement for global genesMenkes foundationAmerican cinematographerFor danielPatient advocacy summitRare disease filmRare disease film festivalGlobal genesCommunity engagement