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Global Genes Team Shares Their Stories on World Rare Disease Day

Global Genes Team Shares Their Stories on World Rare Disease Day
globalgenes.org - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from globalgenes.org Daily Mail and Mail on Sunday newspapers.

Megan oboyleDaniel lucas defabioDaniel defabioTom humeGlobal genes community engagementDisease dayGlobal genesRare disease dayGenes marketingMenkes disease

Tell Your Story: Daniel DeFabioRare Dad, Filmmaker, Advocate

Global Genes staff member Daniel DeFabio shares his why - why he became involved in the rare community after his son was diagnosed with Menkes disease.

New yorkUnited statesDaniel lucas defabioDaniel defabioCommunity engagement for global genesMenkes foundationAmerican cinematographerFor danielPatient advocacy summitRare disease filmRare disease film festivalGlobal genesCommunity engagement