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Genetic diagnostic technology a game changer for rare diseases, but ethics concerns linger

Genetic diagnostic technology a game changer for rare diseases, but ethics concerns linger
euractiv.com - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from euractiv.com Daily Mail and Mail on Sunday newspapers.

Bruxelles capitaleJessie dubiefTheoklis zaoutisPetros tsipourasSimona bellagambiFirst steps initiativeRare disease europeSocial research directorEuropean conferenceRare diseasesOrphan productsVirginie bros facerJann le camPast chief executive officerGenomics englandNew born sequencing

European Health Data Space clears the last hurdle in Parliament

European Health Data Space clears the last hurdle in Parliament
euractiv.com - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from euractiv.com Daily Mail and Mail on Sunday newspapers.

Tomislav sokolEuropean health data space regulationEuropean parliamentHealth data spaceEuropean health data spaceRare disease europe

Diagnosis, treatment and support a challenge for millions of Australians with rare diseases

Diagnosis, treatment and support a challenge for millions of Australians with rare diseases
abc.net.au - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from abc.net.au Daily Mail and Mail on Sunday newspapers.

South australiaUnited kingdomBrant cummingLachy beckettPak poyAnna pak poyNicole millisDepartment of healthRare find foundationNavigator projectNew south walesWestern australiaJuvenile dermatomyositisRare voicesHanna pakRare disease day

An EU Ecosystem for Rare Diseases: The OD Expert Group Discussed its Proposals for Navigating the Challenges Ahead

An EU Ecosystem for Rare Diseases: The OD Expert Group Discussed its Proposals for Navigating the Challenges Ahead
euractiv.com - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from euractiv.com Daily Mail and Mail on Sunday newspapers.

Jose valverdeVictor maertensMichael lyng woldenSimon bennettKaja kantorskaNovo nordiskMaurizio scarpaMatias olsenHealth technology assessmentGovernment affairsEuropean commissionOd expert group membersBiogen idecOd expert groupPublic affairsRegulation on health technology assessment

More than 25,000 refugees fleeing Ukraine have found temporary housing via Airbnb org

Earlier this year Airbnb.org announced a commitment to offer free, temporary housing to up to 100,000 refugees fleeing Ukraine. Since then, Hosts on Airbnb and people around the world have offered their support by opening their homes and donating to Airbnb.org.

Comunidad autonoma de extremaduraOdes ka oblastSan franciscoUnited statesAntony blinkenWhite storkGlobal empowerment missionAirbnb incUnited nationsInternational organization for migrationJesuit universityPxp embassyUkrainian congress committee of americaUs global leadership coalitionPlanting peaceRare disease europe