An aspiring Sunshine Coast photographer with a deadly allergy to almost all foods. A Sydney girl missing the middle area of her brain. A Melbourne teenager that s defied the odds to become one of the oldest in the world to live with a genetic mutation that leaves you unable to walk, talk or eat without a tube. And a 22-month Adelaide boy whose life was cut short by a brutal disease. These are the stories of brave young Australians with some of the rarest diseases in the world. Their families hope to raise awareness and lure funding into research and development in the lead up to Rare Disease Day, Sunday.
Queensland girl allergic to most foods
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Queensland girl allergic to most foods
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Queensland girl allergic to most foods
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