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Crymych RFC raises £30,000 to help child with Pitt Hopkins Syndrome

A NORTH Pembrokeshire rugby club has raised a huge £30,000 to help support a local child with Pitt Hopkins Syndrome.

United kingdomCarwyn reesJiwan jamesOwen jamesGwenan daviesCrymych rugby clubOwen james fundPitt hopkins syndrome

Santa s helpers surprise RMH families with early deliveries

Music producer Raffles van Excel stopped by Bakersfield to promote a new song “Why Oh Why”. During his visit, he decided to take on another labor of love by playing Santa to families in need.

Narada michael waldenEmilio estefanVan exelFrench montanaGeetika bajpaiCeelo greenDoctors without bordersPitt hopkins syndromeRonald mcdonaldBakersfield newsKern county news

Indiana families enjoy holiday adventure through A Kid Again

The organization estimates there are about ten thousand families across the state that qualify for their services.

United statesKatie pappasGwenivive nelsonJustin nelsonIndiana state fairgrounds sundayKid again indianaPitt hopkins syndromeKid againHoliday adventurePitt hopkins syndrome indianaA kid againA kid again indianaRaja nelson

Scientists Receive $4 8M to Pursue Gene Therapy for Incurable Disease

The California Institute for Regenerative Medicine has awarded UC San Diego researchers $4.8 million to advance a gene therapy to treat Friedreich’s ataxia, a

United statesSan diegoAlyssonr muotriStephanie cherquiUc san diego stem cell programCalifornia institute for regenerative medicineSanford consortium for regenerative medicineDepartment of pediatricsUc san diego school of medicineDiego schoolCalifornia instituteRegenerative medicineMazhi therapeuticsPitt hopkins syndromeDiego stem cell programSanford consortium

CIRM Grants $8 8 Million to Pursue Gene Therapies for Two Rare Diseases

CIRM Grants $8 8 Million to Pursue Gene Therapies for Two Rare Diseases
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United statesSan diegoAlysson muotriStephanie cherquiUniversity of californiaCalifornia institute for regenerative medicineUc san diego stem cell programSanford consortium for regenerative medicineDepartment of pediatricsUc san diego school of medicineCalifornia instituteRegenerative medicineDiego schoolMazhi therapeuticsPitt hopkins syndromeDiego stem cell program