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Life with rare, incurable disease is all about quality

This hour on Where We Live, we look into cutting-edge research and the legislative push needed to improve the quality of life for patients with rare diseases.

United statesUniversity of connecticut health centerAmber barryChristian dalessandroGalicia lawrenceJohn dalessandroNational organization for rare disordersConnecticut children medical centerRare disease advisory councilGlycogen storage disease disorders of hypoglycemia programPatient services caseConnecticut health centerWhere we liveNational organizationRare disordersPatient services case manager

Life with rare, incurable disease is all about quality

This hour on Where We Live, we look into cutting-edge research and the legislative push needed to improve the quality of life for patients with rare diseases

United statesUniversity of connecticut health centerAmber barryChristian dalessandroGalicia lawrenceJohn dalessandroNational organization for rare disordersConnecticut children medical centerRare disease advisory councilGlycogen storage disease disorders of hypoglycemia programPatient services caseConnecticut health centerWhere we liveNational organizationRare disordersPatient services case manager

Life with rare, incurable disease is all about quality

This hour on Where We Live, we look into cutting-edge research and the legislative push needed to improve the quality of life for patients with rare diseases

United statesUniversity of connecticut health centerAmber barryChristian dalessandroGalicia lawrenceJohn dalessandroNational organization for rare disordersConnecticut children medical centerRare disease advisory councilGlycogen storage disease disorders of hypoglycemia programPatient services caseConnecticut health centerWhere we liveNational organizationRare disordersPatient services case manager

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