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The UK Rare Diseases Framework

The UK Rare Diseases Framework Published 9 January 2021 © Crown copyright 2021 This publication is licensed under the terms of the Open Government Licence v3.0 except where otherwise stated. To view this licence, visit nationalarchives.gov.uk/doc/open-government-licence/version/3 or write to the Information Policy Team, The National Archives, Kew, London TW9 4DU, or email: psi@nationalarchives.gov.uk. Where we have identified any third party copyright information you will need to obtain permission from the copyright holders concerned. This publication is available at https://www.gov.uk/government/publications/uk-rare-diseases-framework/the-uk-rare-diseases-framework Ministerial foreword The UK Rare Diseases Framework aims to ensure that the lives of people living with rare diseases continue to improve. We will work across the 4 nations of the United Kingdom to ensure that rare disease patients receive the best possible care, building on the commitments in the UK S

Study shows highest risk of vitamin D deficiency in BAME babies

Study shows highest risk of vitamin D deficiency in BAME babies A third of all babies and half of Black, Asian and Minority Ethnic (BAME) babies are vitamin D deficient, a large study of 3000 newborn s in the West Midlands has shown, highlighting potential shortfalls in the current UK antenatal supplementation program. Vitamin D, sometimes referred to as the sunshine vitamin helps the body absorb calcium and phosphate from our diet making it vital for healthy bones, teeth and muscles. As well as causing bone softness and weakness, vitamin D deficiency in newborn infants can lead to serious life-threatening complications such as seizures, serious heart conditions and, rarely, death in the first months of life. With very few dietary sources of vitamin D, supplementation programs are in place to ensure adequate vitamin D consumption in high risk groups which include pregnant women and children.

BAME babies at highest risk of Vitamin D deficiency

 E-Mail A third of all babies and half of Black, Asian and Minority Ethnic (BAME) babies are vitamin D deficient, a large study of 3000 newborn s in the West Midlands has shown, highlighting potential shortfalls in the current UK antenatal supplementation programme. Vitamin D, sometimes referred to as the sunshine vitamin helps the body absorb calcium and phosphate from our diet making it vital for healthy bones, teeth and muscles. As well as causing bone softness and weakness, vitamin D deficiency in newborn infants can lead to serious life-threatening complications such as seizures, serious heart conditions and, rarely, death in the first months of life. With very few dietary sources of vitamin D, supplementation programmes are in place to ensure adequate vitamin D consumption in high risk groups which include pregnant women and children.

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