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India s fight against rare diseases needs more focus on awareness and diagnosis: GlobalData - Pharma News

India s fight against rare diseases needs more focus on awareness and diagnosis: GlobalData - Pharma News
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Lack Of Awareness, Diagnosis Hinders India s Fight Against Rare Diseases: Report

Lack Of Awareness, Diagnosis Hinders India s Fight Against Rare Diseases: Report
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Plea In Kerala High Court By Spinal Muscular Atrophy Patient Seeks Access To Life-Saving Medicine Risdiplam At Affordable Prices

A plea has been moved in the Kerala High Court by a 24-year old suffering from Spinal Muscular Atrophy (SMA), against the overpricing of the life-saving medicine, Risdiplam. Justice Devan Ramachandran.

Justice devan ramachandranNational policy for rare diseasesRisdiplam at government medical collegeKerala high courtSpinal muscular atrophyDevan ramachandranRupees six lakhsPatents actStat govermentsNational policyGovernment medical collegeErala hcPatent monopolyIfe saving medicinceSpinal muscular atrophy smaJustice devan ramachandran

Call for increased awareness on Acid Sphingomyelinase Deficiency as rare disease

Call for increased awareness on Acid Sphingomyelinase Deficiency as rare disease
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National policy for rare diseasesAcid sphingomyelinase deficiencyNational policyRare diseasesNeimann pick diseaseGeneral managerSanofi speciality careAcid sphingomyelinase

Supreme Court Issues Notice In PIL Seeking For Free Treatment For Children With Muscular Dystrophy

The Supreme Court on Friday (06.10.2023) issued notice in a petition seeking to commence a national programme for treatment of children with muscular dystrophy. The petition further sought for the.

Justice manoj misraPrashant singhJustice jb pardiwalaRatnesh kumar jigyasuAishwarya bhatiNational policy for rare diseasesUnion territorySupreme court onSupreme courtAdditional solicitor general aishwaryaPublic interest litigationGene therapy centresCategories rareNational policyRare diseasesRatnesh kumar jigyasu and