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Die man, you were chasing a story about a baby suffering from a horrible condition. What do you got . That is right. Mckenzie turned ayearold last week, and what a celebration it was. How can you not support this baby . Look at this face. Almost 4,000 people tuned in to watch this little girl ring in her birthday, and for good reason, it topped off a dark year for the long island family. Mckenzie was born with a rare skin disorder that leaves her with severe blisters on her body every day. Mckenzie was born with. B. Her type is recessive. Try to say that ten times fast. I met up with the family at their home in hauppauge, new york. We got a glimpse of the day. Generally were a up around 7 30. We stick to a tight schedule. When we do her bandages she tends to fall asleep. That helps the situation. She falls asleep. Then she doesnt need as many medicines. I was struck about how calm and happy she is even when the day gets to be a little more challenging into. My husband knew right away.

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