Register for Online FSHD Masterclass August 12
The FSHD Society is offering its first-ever CME-accredited masterclass on facioscapulohumeral muscular dystrophy (FSHD). This course, which will be held virtually on August 12, is of interest to any physician and allied health professional who sees adult and pediatric neuromuscular patients with undiagnosed FSHD.
The half-day course will cover diagnosis and management in adult and pediatric patients; updates on genetic and epigenetic testing; and molecular pathophysiology, current treatment strategies, and clinical trials. Attendees can earn up to 4.25 continuing medical education (CME) credits.
Although FSHD is one of the most common forms of muscular dystrophy, it is often under-diagnosed, and diagnosed patients don’t always benefit from the existing standards of care.
FSHD Society offers CME-accredited masterclass on FSH muscular dystrophy prweb.com - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from prweb.com Daily Mail and Mail on Sunday newspapers.
Mother of Four Kids Who Have a Rare, Incurable Disease Pens Surviving Myotonic Dystrophy, to Help Other Families Cope
A progressive disease often missed, DM sufferers may seem apathetic or lazy
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SALT LAKE CITY, Jan. 12, 2021 /PRNewswire/ Having one child with a rare, incurable and often misunderstood genetic disease is tough enough but Ann S. Woodbury has four children and a husband with myotonic dystrophy (Dystrophia Myotonica, DM), a disease that is characterized by progressive muscle wasting and weakness. Ever since their diagnosis in 1998, Woodbury has been advocating for families like hers and educating physicians about the symptoms that can vary from individual to individual and affect multiple organs.