Mother of Four Kids Who Have a Rare, Incurable Disease Pens Surviving Myotonic Dystrophy, to Help Other Families Cope
A progressive disease often missed, DM sufferers may seem apathetic or lazy
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SALT LAKE CITY, Jan. 12, 2021 /PRNewswire/ Having one child with a rare, incurable and often misunderstood genetic disease is tough enough but Ann S. Woodbury has four children and a husband with myotonic dystrophy (Dystrophia Myotonica, DM), a disease that is characterized by progressive muscle wasting and weakness. Ever since their diagnosis in 1998, Woodbury has been advocating for families like hers and educating physicians about the symptoms that can vary from individual to individual and affect multiple organs.