Rs 14.92 crore raised on ImpactGuru.com to cover treatment expenses of a 5-month-old ANI | Updated: Feb 10, 2021 16:03 IST
Mumbai (Maharashtra) [India], February 10 (ANI/NewsVoir): Mumbai-based Priyanka and Mihir Kamat raised Rs 14.92 crore through crowdfunding on ImpactGuru.com to cover the cost of the World s Most Expensive Drug - Zolgensma, as their five-month-old baby Teera is diagnosed with Spinal Muscular Atrophy (SMA) Type 1.
SMA is a rare genetic disease that attacks the baby s nerves and muscles, and as it progresses, makes it extremely difficult for the child to carry out basic activities like sit up, lift their head, swallow milk, and even breathe. SMA is currently the leading genetic cause of infant death worldwide, and it affects 1 in 10,000 babies.
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