Longtime NBC News foreign correspondent Richard Engel announced Thursday that his 6-year-old son Henry had died after a lifelong battle with a rare brain disorder.
it means lifelong permanent, untreatable physical and intellectual impairment. as he physically grew, henry was unable to walk, speak, or efficiently feed himself. a tough journey was ahead. richard and mary chose to share it publicly. we wanted to share it publicly. it s the worst days. the worst ever felt as a caregiver. physically, mentally, worrying, the anxiety about what is going to happen to him, depression, what does the future look like? and they shared the best days. like the celebration when richard first heard those two unforgettable words. henry looked at me and he called me dada for the first-time, just a few days ago. and it was something i had been waiting for four years. physical therapy helped briefly sitting up unsupported,
report in our nbc family. henry engel, the six-year-old son of our colleague richard engel. has passed away. he was diagnosed with a horrible syndrome. richard and his courageous wife mary have spent years promoting awareness to this condition. lester holt has more on their story. he has faced tragedy and conflict across the world. but the news that richard engel faced while on foreign assignment in 2014 was like nothing he had ever faced. i got back in this convoy shaking. it was the worst day of my life. richard and his wife mary forrest, learning their then two-year-old son had an extremely rare and incurable genetic condition. i called you and said, we have a result. and i said, it is not good. it is not just delay.
report in our nbc family name. henry engel, the six-year-old son of our colleague richard engel. richard and his courageous wife mary have spent years promoting awareness to this condition. lester holt has more on their story. he has faced tragedy and conflict across the world. but the news that richard engel while on foreign assignment in 2014 was like nothing he had ever faced. i got back in this convoy shaking. it was the worst day of my life. richard and his wife mary, learning their then two-year-old son had an extremely rare and incurable genetic condition. i called you and said, we have a result. and i said, it is not good.