briefly sitting up on supported, a major milestone. richard and mary dedicated themselves to creating awareness of rett syndrome. researchers even learning things through henry, studying his cells to one day help others. but in may, henry had taken a turn for the worse, but was home, getting love from brother theo. today, richard and mary tweeting the crushing news, that henry had passed away. he had the softest blue eyes, at easy smile, and a contagious giggle. we always surrounded him with love and he returned it, and so much more. richard and mary s beloved henry with six years old. our heavy hearts are with the engel family tonight. if you would like to learn more and support the rett syndrome research foundation, donations
Longtime NBC News foreign correspondent Richard Engel announced Thursday that his 6-year-old son Henry had died after a lifelong battle with a rare disorder.