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Three Kiwi women with invisible illness die in three months

Three Kiwi women diagnosed with Ehlers-Danlos Syndrome (EDS) who struggled to have their illness recognised have died in the last three months. Now an advo

New zealandNew zealandersGeorgie ferrisFraser burlingStephanie astonNorma hockenhullRachel palmerMichael craigKelly mcquinlanEhlers danlos communityThree kiwiEhlers danlos syndromeOaklands chapelEhlers danlos

Beyond the Diagnosis: Putting a face to children with rare diseases

Shining a spotlight on children with rare diseases. An art exhibit does that, putting a human face to the 7,000 rare diseases.

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Rossendale woman co-hosts disability episode of Steph s Packed Lunch

The Rossendale woman planned and co-hosted a special episode of Channel 4’s Steph’s Packed Lunch.

Steph mcgovernEhlers danlosPacked lunch

Millie Hardiman on her post surgery recovery

Millie Hardiman was told she had anorexia but she actually had a rare condition that made eating extremely painful. Read full subscriber story.

Ehlers danlosMillie hardiman

Dying to get help they needed

A young Dunedin woman "abandoned" by the healthcare system was in so much pain she requested assisted dying. Now she and another Dunedin woman are.

New zealandMelissa kingRichard sullivanJanine hardimanEhlers danlosMillie hardimanFiona ellisTe whatu ora health new zealandMiss hardimanPrincess margaret hospitalFormer zumbaHigh cost treatment poolWhatu ora health new zealand

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