An 18-year-old girl diagnosed with likely Ehlers-Danlos Syndrome (EDS) has been refused treatment in New Zealand as doctors claim she is faking her symptom
A Hastings family who drained their bank accounts to fight the cancer that would kill their father now face more heartbreak as his daughter, who has a rare.
Three Kiwi women diagnosed with Ehlers-Danlos Syndrome (EDS) who struggled to have their illness recognised have died in the last three months.
Now an advo
Ehlers-Danlos Syndromes (and hypermobility spectrum disorders) are 13+ types of a rare connective tissue disorder. Hypermobile type, our most prevalent type, is currently noted as 1:3100 1, but is thought to be more prevalent as described; the .