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Refused treatment: Kiwi teen accused of faking bowel illness

An 18-year-old girl diagnosed with likely Ehlers-Danlos Syndrome (EDS) has been refused treatment in New Zealand as doctors claim she is faking her symptom

New zealandHawke bayNew zealand generalStephanie astonOlivia aldieKelly mcquinlanDavid doigTrinity hutchinsWilhelm sandmannAnna mcgrathJaimee gregoryEhlers danlos communityEhlers danlos syndromeJaime lythAuckland city hospitalWhatu ora

Steph Aston sought help for a rare genetic disorder She died after being accused of faking her illness

EHLERS-DANLOS SYNDROME: After being misdiagnosed and committed to a psychiatric ward, Steph became a tireless advocate for Ehlers-Danlos Syndrome patients before her death at the age of 33, Bevan Hurley writes

New zealandNational institutes of healthUnited statesUnited kingdomSilver springNew zealanderZealand heraldAlissa zingmanSteph astonJameela jamilKelly mcquinlanJo hillRuby hillEhlers danlos syndrome research foundationAuckland district health boardZealand health

Steph Aston sought help for a rare genetic disorder She died after being accused of faking her illness

EHLERS-DANLOS SYNDROME: After being misdiagnosed and committed to a psychiatric ward, Steph became a tireless advocate for Ehlers-Danlos Syndrome patients before her death at the age of 33, Bevan Hurley writes

New zealandNational institutes of healthUnited statesUnited kingdomSilver springNew zealanderAlissa zingmanJo hillJameela jamilSteph astonZealand heraldRuby hillKelly mcquinlanEhlers danlos syndrome research foundationAuckland district health boardZealand health

Woman, 33, dies from rare disorder after doctors told her it was all in her head

A woman has died at the age of just 33 after doctors told her her rare genetic illness was "all in her head".

New zealandUnited kingdomStephanie astonSteph astonEhlers danlos syndromeEhlers danlos syndromes new zealand

Woman, 33, tragically dies from rare illness after doctors said it was all in her head

The woman died after living with the rare illness for five years. Her family said she was a beacon in their community.

New zealandZealand heraldStephanie astonKelly mcquinlanSteph astonFacebook ruby voiceEhlers danlos syndromes new zealandEhlers danlos syndromeVoice trustNew zealand heraldDanlos syndromes new zealandAuckland hospitalRare illness

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