1 in 12 Canadians are affected by rare disease disorder, states Canadian Organization for Rare Diseases (CORD) lack specialist care, accurate diagnosis.
What We Learned at RARE Health Equity Summit globalgenes.org - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from globalgenes.org Daily Mail and Mail on Sunday newspapers.
What We Learned at RARE Health Equity Summit globalgenes.org - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from globalgenes.org Daily Mail and Mail on Sunday newspapers.
When she was born in October, the doctors gave Amadea Dempster an hour to live. She was missing the top of her skull, had no visible nose and her brain was unusually structured. But she survived.
The family of a 30-year-old man in Thunder Bay, Ont., who's fighting a rare form of cancer is waging a battle of their own: Trying to get funding for his treatments, which cost $9,000 each.