Page 8 - Durhane Wong Rieger News Today : Breaking News, Live Updates & Top Stories | Vimarsana

This is but one of the many stories shared by Durhane Wong-Rieger, president and CEO of the Canadian Organization for Rare Disorders (CORD). Feb. 28 is Rare Disease Day, and with one in 12 Canadians affected by a rare disease two-thirds are children Wong-Rieger talked about the burden felt by patients and families. “Rare diseases do affect a lot of people. There are between 6,000 and 7,000 rare diseases. Some will affect one in 2,000, some will affect one in a million, some are so rare that we only know maybe two people (affected) in all of Canada,” Wong-Rieger said. Some well-known rare diseases include cystic fibrosis, hemophilia, sickle cell disease and Tay-Sachs disease. Many rare diseases are genetic due to a misprogramming of a person’s DNA, according to Wong-Rieger.

Durhane wong riegerCanadian organization for rare disordersCanadian organizationRare disordersRare disease dayகனடியன் ஆர்கநைஸேஶந் க்கு ரேர் கோளாறுகள்கனடியன் ஆர்கநைஸேஶந்ரேர் கோளாறுகள்ரேர் நோய் நாள்