Hope. I could tell you stories about looking in china to see theres some tea you might be up uphold about, but that was long ago. I think theres also it really is up to the companies. Fda has always to my knowledge at least in duchenne and other fields been willing to entertain and talk about compassionate use . I think for the Rare Disease Community is talks about and get us back to trial design but in general, trials are designed to test a sub set of patients. In the duchenne committee, the six minute walk test is standard outcome, primary outcome measure. That means a child with duchenne would have to walk six minutes and even further as learn more about the testing its in a very narrow subset of people in that six minute walk test. Program was put into place at te National Cancer institute. So with that longitude, that breadth of experience within your specialty, are there things that you want to share with others about what that experience has taught you . Well, let what we did ba
Trials because they are being treated in places that are not running trials. We need to move this out in to the community, make those folks eligible. And im on the committee in the lung map trial, and i have really urged that we make sure that we are out there in the community so that anyone who has lung cancer has an opportunity to participate in the research and perhaps, have a more effective therapy. So, i think the Electronic Health records that its a huge different area that we are working on and how to do Clinical Trials utilizing the infrastructure that is emerging. Right, thank you very much. Chair, thanks, gentle lady, and now recognize gentleman from new jersey. Five minutes. Thank you very much, mr. Chairman. A focus of your testimony has been focused on fdas efforts on Patient Engagement. Its my understanding that clinicaltrials. Gov was intended to provide Clinical Study information for patients, Health Care Providers and researchers. But it seems to me that this site lack
And im on the committee in the lung map trial, and i have really urged that we make sure that we are out there in the community so that anyone who has lung cancer has an opportunity to participate in the research and perhaps, have a more effective therapy. So, i think the Electronic Health records that its a huge different area that we are working on and how to do Clinical Trials utilizing the infrastructure that is emerging. Right, thank you very much. Chair, thanks, gentle lady, and now recognize gentleman from new jersey. Five minutes. Thank you very much, mr. Chairman. A focus of your testimony has been focused on fdas efforts on Patient Engagement. Its my understanding that clinicaltrials. Gov was intended to provide Clinical Study information for patients, Health Care Providers and researchers. But it seems to me that this site lacks considerable information and has proven to be difficult to navigate. Dr. Woodcock, would you please comment on the current utility of clinicaltrials
Ifill plus, the sweeping Public Health transformation in rwanda. Where aid groups and Trained Health workers are overcoming a shortage of doctors, while still achieving dramatic results. Reporter the number of children dying before age five has dropped to a quarter of what it was in the year 2,000. The number mothers who die in childbirth is down 66 since 1990. Ifill those are just some of the stories were covering on tonights pbs newshour. Major funding for the pbs newshour has been provided by moving our economy for 160 years. Bnsf, the engine that connects us. Bae systems. Thats inspired work. Supported by the john d. And catherine t. Macarthur foundation. Committed to building a more just, verdant and peaceful world. More information at macfound. Org and with the ongoing support of these institutions and foundations. And. This program was made possible by the corporation for public broadcasting. And by contributions to your pbs station from viewers like you. Thank you. Woodruff ukr
To get that and slow growth, not a rapid blow. And joe biden is at it again. Making the math nearly impossible for Bernie Sanders. The former Vice President , Whose Campaign was on loife support a few weeks ago, is bringing the two sides together. I want to thank Bernie Sanders for supporting us with their Tireless Energy and passion. We share a common goal. And together well defeat donald trump. We will defeat him together. And this just in, were expecting to hear from Bernie Sanders in burlington. He will be making a statement at 1 00 eastern from vermont. And what women want. Even though there was no Elizabeth Warren endorsement, her supporters appear to have gone big for joe biden, who nearly dbled his supporters among College Educated women last night. You have to do well with suburban women. Joe biden is doing very well with suburban women. It is my set as a ban senate some sort of signal went out. If its true what they are seeing in the missouri exit that they are blocking biden