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Report by Granada Reports journalist Anna Youssef
A mother who says her chronic illness leaves her not wanting to exist anymore is raising awareness of her condition to give others a better understanding of what life is like.
Clair Jones has Fibromyalgia, an incurable condition which causes chronic pain and triggers fatigue, muscle stiffness and memory loss.
Its exact cause is unknown - Clair s symptoms began as a teenager, but took decades to diagnose.
It s like a burning pain. Like someone sticking hot pokers into you. The pain is to the point where. you don t want to exist - you really don t want to be here anymore.