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Since 2008 life-changing Kuvan, BioMarin s brand name for sapropterin, has been available across Europe.
It costs around £45,000 per adult-per-year but as low as £4,000 for a toddler yet for over ten years the NHS have failed to strike a deal.
NHS drugs appraiser the National Institute for Health and Care Excellence (Nice) are again reviewing Kuvan, with a decision due in April.
Holly and Callum look at our coverage (Image: )
Meanwhile BioMarin s patents have now expired, meaning now in 2021 rival firms can make their own, cheaper version.
If BioMarin refuse to lower their price, campaigners urge NHSE to negotiate a deal with cheaper generic drug makers instead.
Now Matt Hancock’s predecessor has written a letter to James Lennertz, boss of BioMarin Europe, exclusively seen by the Express.
Mr Hunt, chairman of the Health and Social Care Select Committee, said: “For far too long people have been denied the normal life most of us take for granted.
“Now we hope and pray 2021 will be not just the year we defeat Covid, but the year many families can get back their lives by accessing this vital drug.
“But the manufacturer BioMarin needs to be flexible on price.
“What is the point in medical breakthroughs if most people can’t afford to benefit from them?”
Several centuries after the birth of Christ, Christians began celebrating the birth of Christ in December while the Romans were still holding their pagan celebrations. By decorating their homes with holly as the Romans did, Christians avoided detection and persecution.
The early Christian Church associated holly with various legends about its role in Christ s crucifixion. According to one legend, Christ s crown of thorns was formed from holly. The legend claimed that the holly berries were originally white, but were stained red by Christ s blood. So for ancient Christians, the sharply pointed holly leaves became symbols of the thorns in Christ s crown and the red berries drops of his blood.
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