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Since 2008 life-changing Kuvan, BioMarin s brand name for sapropterin, has been available across Europe. It costs around £45,000 per adult-per-year but as low as £4,000 for a toddler yet for over ten years the NHS have failed to strike a deal. NHS drugs appraiser the National Institute for Health and Care Excellence (Nice) are again reviewing Kuvan, with a decision due in April. Holly and Callum look at our coverage (Image: ) Meanwhile BioMarin s patents have now expired, meaning now in 2021 rival firms can make their own, cheaper version. If BioMarin refuse to lower their price, campaigners urge NHSE to negotiate a deal with cheaper generic drug makers instead.

United kingdomWest midlandsUnited kingdom generalMatt hancockChristmas hollyRavi jayaramJeremy huntBiomarin europe james lennertzCallum grahamStanley brownCaroline grahamNational institute for healthCare select committeeHolly grahamPrivacy noticeSocial care select committee