Sick Newbridge photographer Pat Tinsley devastated as HSE rejects wonder drug
Health service rejects amyloidosis sufferers’ hopes that Patisiran will be paid for by State
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Well-known Newbridge photographer Pat Tinsley, and others living with the chronic disease hATTR Amyloidosis, suffered a bitter blow when they learnt last week that members of the HSE’s Corporate Pharmaceutical Unit recommended against the reimbursement of Patisiran, a game-changing drug in the treatment of the condition.
Pat (65) stated the decision left him feeling “thoroughly dejected and depressed with one of the last rays of hope extinguished… and the light at the end of the tunnel fading further.”