>> it led to the first of many trips to the er. >> they did the million dollar workup, mri, eeg, spine tap, they did the workup and found nothing and sent us home. >> no abnormal blood test or scan. >> and developing normally too, talking, walking, the same day as her twin. nothing was behind yet. >> by the time she was 2, though, the seizures had become constant, and started to take their toll on their once happy, joyful little girl. >> she started to really decline, cognitively. and she was slipping away. and she just wasn't keeping up with her twin. >> they finally found an answer, and it was awful news. gervais syndrome. it is severe intractable epilepsy. the seizures start during the first year of life and are unstoppable, difficult to control, and very damaging. >> severe behavioral problems. attention deficit and hyperactivity. the self injury, banging her head on the floor and pulling her hair out. like a possessed child. this isn't your happy charlotte. >> it was a race against time. many gervais kids die young, in early childhood. charlotte was almost 3.