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CNN Weed Dr. Sanjay Gupta Reports November 7, 2015 06:04:00

no medications. it s a fluke. right. a fluke made sense. after all charlotte, nicknamed charlie, was born perfectly healthy, a fraternal twin to sister chase. charlie always had big, big smiles. just happy kids. easy. easy. very much so. so it was around three months you said that when you first noticed that charlie had a seizure. i was chaining her diaper, well putting a new diaper on from after the bath, and her eyes just started flickering. it led to the first of many trips to the e.r. they did the million dollar workup, mri, eeg, spine tap, they did the workup and found nothing and sent us home. no abnormal blood test or scan. and developing normally too, talking, walking, the same day as her twin. nothing was behind yet. by the time she was 2, though, the seizures had become constant, and started to take their toll on their once happy, ....

Holding Charlotte , Nicknamed Charlie , Fraternal Twin To Sister Chase , Big Smiles , Blood Test , It Led , Dollar Workup , Spine Tap ,

CNN CNN Newsroom Live August 22, 2015 07:04:00

it s okay, baby. this is their daughter charlotte having a seizure. we just thought it was just one random fee febrile seizure? a fluke. a fluke made sense. after all charlotte, nicknamed charlie, was born perfectly healthy, a fraternal twin to sister chase. charlie always had big, big smiles. just happy kids. easy. easy. very much so. so it was around three months you said that when you first noticed that charlie had a seizure. i was chaining her diaper, well putting a new diaper on from after the bath, and her eyes just started flickering. it led to the first of many trips to the e.r. they did the million dollar workup, mri, eeg, spinal tap. ....

Holding Charlotte , Nicknamed Charlie , Fraternal Twin To Sister Chase , Big Smiles , It Led , Dollar Workup , Spinal Tap ,

CNN Weed Dr. Sanjay Gupta Reports April 25, 2015 04:04:00

this is their daughter charlotte having a seizure. we just thought it was just one random febrile seizure. a fluke. a fluke made sense. after all charlotte, nicknamed charlie, was born perfectly healthy, a fraternal twin to sister chase. charlie always had big, big smiles. just happy kids. easy. easy. very much so. so it was around three months you said that when you first noticed that charlie had a seizure. i was chaining her diaper, well putting a new diaper on from after the bath, and her eyes just started flickering. it led to the first of many trips to the er. they did the million dollar workup, mri, eeg, spine tap, they did the workup and found nothing and sent us home. no abnormal blood test or scan. and developing normally too, talking, walking, the same day as her twin. nothing was behind yet. ....

Holding Charlotte , Nicknamed Charlie , Fraternal Twin To Sister Chase , Big Smiles , It Led , Dollar Workup , Spine Tap , Blood Test ,

CNN Weed Dr. Sanjay Gupta Reports April 19, 2015 23:04:00

this is their daughter, charlotte, having a seizure. we just thought it was just one random febrile seizure. nothing to really no. no medications, it s a fluke. right. a fluke made sense. after all charlotte, nicknamed charlie, was born perfectly healthy, a fraternal twin to sister chase. charlie always had big, big smiles. just happy kids. easy. easy. very much so. so it was around 3 months you said that when you first noticed that charlie had a seizure. i was chaining her diaper, well putting a new diaper on from after the bath, and her eyes just started flickering. it led to the first of many trips to the e.r. they did the million dollar workup, mri, eeg, spine tap, they did the workup and found nothing and sent us home. no abnormal blood test or no abnormal scan. and developing normally, too. talking and walking, the same day as her twin. nothing was behind yet. by the time she was 2, ....

Holding Charlotte , Nicknamed Charlie , Fraternal Twin To Sister Chase , Big Smiles , It Led , Dollar Workup , Spine Tap , Blood Test ,

CNN Weed Dr. Sanjay Gupta Reports January 4, 2015 01:05:00

it led to the first of many trips to the er. they did the million dollar workup, mri, eeg, spine tap, they did the workup and found nothing and sent us home. no abnormal blood test or scan. and developing normally too, talking, walking, the same day as her twin. nothing was behind yet. by the time she was 2, though, the seizures had become constant, and started to take their toll on their once happy, joyful little girl. she started to really decline, cognitively. and she was slipping away. and she just wasn t keeping up with her twin. they finally found an answer, and it was awful news. gervais syndrome. it is severe intractable epilepsy. the seizures start during the first year of life and are unstoppable, difficult to control, and very damaging. severe behavioral problems. attention deficit and hyperactivity. the self injury, banging her head on the floor and pulling her hair out. like a possessed child. this isn t your happy charlotte. it was a race against time. m ....

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