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lena was treated as a baby with zolgensma — the drug came too late for amelia. lena is our little miracle. we knew that if we give lena the drug before any symptoms, it will be the best effect. that's why the pre—screening, it's so important. this is clearly a remarkable family. amelia can't get to school half the time because of chest infections and hospital appointments, yet this gcse student is in all the top sets at school. do you think that you have to try harder and work harder than anybody else? oh, yeah, definitely. definitely. this week alone i'm missing a whole day of school. so what will you have to do to catch up? i will have to catch up over the weekend. but when i ask her about her sister, lena, this strong, determined

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