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Transcripts for BBCNEWS BBC News 20220107 10:46:00

lena was treated as a baby with zolgensma the drug came too late for amelia. lena is our little miracle. we knew that if we give lena the drug before any symptoms, it will be the best effect. that s why the pre screening, it s so important. this is clearly a remarkable family. amelia can t get to school half the time because of chest infections and hospital appointments, yet this gcse student is in all the top sets at school. do you think that you have to try harder and work harder than anybody else? oh, yeah, definitely. definitely. this week alone i m missing a whole day of school. so what will you have to do to catch up? i will have to catch up over the weekend. but when i ask her about her sister, lena, this strong, determined

Transcripts for BBCNEWS The Travel Show 20220107 11:50:00

this is three year old lena s preferred mode of travel whizzing by in the lap of her 16 year old sister, amelia. they both have sma although a different type from edward s. lena was treated as a baby with zolgensma the drug came too late for amelia. lena is our little miracle. we knew that if we give lena the drug before any symptoms, it will be the best effect. that s why the pre screening, it s so important. this is clearly a remarkable family. amelia can t get to school half the time because of chest infections and hospital appointments, yet this gcse student is in all the top sets at school. do you think that you have to try harder and work harder than anybody else? oh, yeah, definitely. definitely.

Transcripts for BBCNEWS HARDtalk 20220107 09:47:00

lena was treated as a baby with zolgensma the drug came too late for amelia. lena is our little miracle. we knew that if we give lena the drug before any symptoms, it will be the best effect. that s why the pre screening, it s so important. this is clearly a remarkable family. amelia can t get to school half the time because of chest infections and hospital appointments, yet this gcse student is in all the top sets at school. do you think that you have to try harder and work harder than anybody else? oh, yeah, definitely. definitely. this week alone i m missing a whole day of school. so what will you have to do to catch up? i will have to catch up over the weekend. but when i ask her about her sister, lena, this strong, determined

Transcripts for BBCNEWS Breakfast 20220107 06:16:00

developing children. and they will acquire walking, they will acquire the milestones. so the difference is immense. this is three year old s lena s preferred mode of travel whizzing by in the lap of her 16 year old sister, amelia. they both have sma although a different type from edward s. lena was treated as a baby with zolgensma the drug came too late for amelia. lena is our little miracle. we knew that if we give lena the drug before any symptoms, it will be the best effect. that s why the pre screening it s so important. this is clearly a remarkable family. amelia can t get to school half the time because of chest infections and hospital appointments, yet this gcse student is in all the top sets at school. do you think that you have

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