Long Island families fight for cure for their kids' rare genetic disorder
Two families on Long Island talk about their children who have a very rare genetic syndrome.
PORT WASHINGTON, N.Y. - A video created by Long Island parents Scott and Ilissa Reich introducing the world to their son Eli, 2, and raising awareness for their foundation
Believe in a Cure has been garnering attention all across social media platforms. It garnered more than 50,000 views in less than two weeks.
"We need the power of community to be able to foster the kind of collaboration and support that's needed to drive something forward quickly enough that it will be available — a treatment that will be available in time to intervene for Eli and others like him," Scott said.