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Long Island families fight for cure for their kids' rare genetic disorder


Long Island families fight for cure for their kids rare genetic disorder
Two families on Long Island talk about their children who have a very rare genetic syndrome.
PORT WASHINGTON, N.Y. - A video created by Long Island parents Scott and Ilissa Reich introducing the world to their son Eli, 2, and raising awareness for their foundation
Believe in a Cure has been garnering attention all across social media platforms. It garnered more than 50,000 views in less than two weeks. 
We need the power of community to be able to foster the kind of collaboration and support that s needed to drive something forward quickly enough that it will be available a treatment that will be available in time to intervene for Eli and others like him, Scott said. ....

Josie Johnson , Scott Reich , Caroline Martinez , Ilissa Reich , Nicole Johnson , Research Foundation , Long Island , Mount Sinai , Port Washington , ஜோசி ஜான்சன் , ஸ்காட் ரீச் , கரோலின் மார்டினெஸ் , நிக்கோல் ஜான்சன் , ஆராய்ச்சி அடித்தளம் , நீண்டது தீவு , ஏற்ற சினை , போர்த் வாஷிங்டன் ,

Family Races Against Time to Save 2-year-old Son


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PORT WASHINGTON, N.Y., April 28, 2021 /PRNewswire/ On their son Eli s second birthday, Ilissa and Scott Reich announced the public launch of their 501(c)(3) non-profit foundation, Believe in a Cure.
Believe in a Cure s mission is to find and fund a cure for FOXG1 Syndrome, a rare brain disorder that afflicts Eli Reich and some 750 other children worldwide. Most patients are unable to walk, talk, or do anything independently. The majority of patients also suffer dangerous seizures and have visual impairment, sleep and movement disorders, general irritability, and premature death.
Watch the story of Eli Reich and the Believe in a Cure Foundation seeking to find and fund a cure for FOXG1 Syndrome. ....

Scott Reich , Advisory Council , Secure Inc , Autism Spectrum , Scientific Advisory Board , ஸ்காட் ரீச் , குணப்படுத்த இன்க் , மன இறுக்கம் ஸ்பெக்ட்ரம் ,