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Facing long odds, couple seeks cure for 2-year-old with rare disease newsday.com - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from newsday.com Daily Mail and Mail on Sunday newspapers.
Long Island families fight for cure for their kids rare genetic disorder Two families on Long Island talk about their children who have a very rare genetic syndrome. PORT WASHINGTON, N.Y. - A video created by Long Island parents Scott and Ilissa Reich introducing the world to their son Eli, 2, and raising awareness for their foundation Believe in a Cure has been garnering attention all across social media platforms. It garnered more than 50,000 views in less than two weeks. We need the power of community to be able to foster the kind of collaboration and support that s needed to drive something forward quickly enough that it will be available a treatment that will be available in time to intervene for Eli and others like him, Scott said. ....
Share this article Share this article PORT WASHINGTON, N.Y., April 28, 2021 /PRNewswire/ On their son Eli s second birthday, Ilissa and Scott Reich announced the public launch of their 501(c)(3) non-profit foundation, Believe in a Cure. Believe in a Cure s mission is to find and fund a cure for FOXG1 Syndrome, a rare brain disorder that afflicts Eli Reich and some 750 other children worldwide. Most patients are unable to walk, talk, or do anything independently. The majority of patients also suffer dangerous seizures and have visual impairment, sleep and movement disorders, general irritability, and premature death. Watch the story of Eli Reich and the Believe in a Cure Foundation seeking to find and fund a cure for FOXG1 Syndrome. ....
Tel Aviv U Innovative Research May Save NY Jewish Boy from Rare Neurological Syndrome | The Jewish Press - JewishPress.com | David Israel | 3 Nisan 5781 – March 15, 2021 jewishpress.com - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from jewishpress.com Daily Mail and Mail on Sunday newspapers.
חוקרים ישראלים במירוץ נגד הזמן להצלת תינוק אמריקני walla.co.il - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from walla.co.il Daily Mail and Mail on Sunday newspapers.