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Patient partnership falling to wayside in COVID-19 research rush


“Nothing about us without us” has become a common refrain over the past decade as patients and communities have pushed for a greater say in health care research and decision-making. But now some fear pandemic expediencies are eroding hard-won advances in patient partnership.
COVID-19 had a “catastrophic” impact on patient engagement in health research, says Bertrand Lebouché, a clinician-researcher at McGill University Health Centre.
Prior to the pandemic, funding bodies increasingly required investigators to involve patients throughout the research process from setting priorities to translating results into practice. “It gives an opportunity for the patient to become part of the solution,” says Lebouché. ....

United Kingdom , Lisa Mccorkell , Bertrand Lebouch , Cynthia Weijs , Kerry Kuluski , University Of Calgary , Rare Disease Foundation , Mcgill Interdisciplinary Initiative In Infection , Mcgill University Health Centre , Oriented Research , Canadian Institutes Of Health Research , Mcgill University Health , Better Health , Trillium Health , System Impact Fellow , Alberta Health Services , Canadian Institutes , Health Research , Patient Oriented Research , Mcgill Interdisciplinary Initiative , Isabel Jordan , British Columbia Based , Rare Disease , Open Access , Creative Commons Attribution , ஒன்றுபட்டது கிஂக்டம் ,

50 FOR 50: Runner pounds pavement for Siloam Mission, other good causes


Author of the article: Glen Dawkins
Publishing date: Dec 27, 2020  •  December 27, 2020  •  2 minute read  • 
Junel Malapad (front) spent 2020 taking on the challenge of accomplishing 50 50-kilometre runs to celebrate his turning 50 in June. He wrapped it up on Boxing Day with a 100-kilometre run to raise funds for Siloam Mission. Photo by Chris Procaylo /Winnipeg Sun
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As he had done for five previous Boxing Days, Junel Malapad laced up his runners on Saturday for his annual fundraising run as part of his quest to “Change Boxing Day to Running Day.”
But this year’s run was different in that it was the culmination of a year-long effort to celebrate his turning 50 with a special achievement. In January, Malapad decided to run the equivalent of 50 marathons this year – one a week – and raise awareness and funds for a different charity each month. ....

Manitoba Brain Injury Foundation , Campership Program , Boniface Hospital Foundation , Canadian Mental Health Association Manitoba , Stroke Foundation , Council For Canadian Urbanism Can , Rare Disease Foundation , Boxing Day , Main Street Project , Mood Disorders Manitoba , Cancercare Manitoba , Dream Factory , Canadian Urbanism , Boniface Hospital , Tyndall Park , ம்யாநிடோப மூளை காயம் அடித்தளம் , போனிபேஸ் மருத்துவமனை அடித்தளம் , கனடியன் மன ஆரோக்கியம் சங்கம் ம்யாநிடோப , பக்கவாதம் அடித்தளம் , சபை க்கு கனடியன் நகர்ப்புறவாதம் முடியும் , ரேர் நோய் அடித்தளம் , குத்துச்சண்டை நாள் , பிரதான தெரு ப்ராஜெக்ட் , மனநிலை கோளாறுகள் ம்யாநிடோப , புற்றுநோய் ம்யாநிடோப , கனவு தொழிற்சாலை ,