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Lupus: Welsh centres of excellence could 'extend lives'


BBC News
By Chris Wood
image captionCampaigners say centres of excellence could help lupus patients in Wales
Calls have been made for specialist help in Wales to treat an incurable, life-limiting condition which takes an average of six years to diagnose.
An estimated 2,000 people in Wales are affected by lupus.
Campaigner Wendy Diment said centres of excellence would extend the lives of lupus patients in Wales.
A Welsh Government spokeswoman said health boards could refer people for further treatment if it was not available locally.
There is currently no cure for lupus and it occurs when the immune system mistakenly attacks healthy parts of the body. ....

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Lupus: 'No-one seemed willing to treat me during Covid'


Lupus: No-one seemed willing to treat me during Covid
By Katy Prickett
Some people living with the incurable autoimmune disease lupus have had treatments delayed or cancelled during the coronavirus pandemic. But they also told Cambridge University researchers they now feel more understood by society, as everyone has had to protect themselves and adapt to a slower pace of life. The BBC has spoken to three patients about their experiences.
There is always the fear of organ damage
image copyrightAnisah Patas
image captionAnisah Patas was told her symptoms were all in her head for years before she was diagnosed aged 12 ....

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